Fighting Dystonia, Chronic Lyme, EDS Type 2 & more… any questions?

Posts tagged ‘nurse’

Ambulance Trip

I’d like to start this post off by apologizing in advance if bits don’t quite make sense. I have a fair bit of medication in my system and I am having to concentrate very hard as I do not really feel like I am with it today. Over the last few days my body has been very interesting. I presumed it was just in meltdown mode after the trip to London and back for my Botox injections last Tuesday. My right leg in particular has been bad. The spasms have been impressive but rather painful. I have found myself repeatedly over the last few days in the position in the photo below. which I can assure you is not a comfortable one to be in.

Photo: So its not a particularly bad spasm. But why my leg felt the need to spend more time next to my head baffles me and was rather uncomfertable

Last night my body did full body twitches, which was a new symptom for me, however this did not seem to stop, then my leg joined in spasming repeatedly into the above position. However several times whilst in that position my hip spasmed in one direction and my lower leg spasmed in the opposite direction. This caused agony, and according to my family they all heard a cracking sound. I then started to have lots of my Non Epileptic Seizures. In between seizures when I was spasming we tried administering our crisis medication, Tramadol and diazepam, but this did not seem to touch the pain or the spasms, which meant that an Ambulance had to be phoned.

The paramedics, Gareth and Amanda, were two of the nicest people I have met. They helped keep me as comfortable as possible, which is saying something considering the amount of pain I was in. It was decided that I needed to go to hospital to have my leg checked out as it was swelling and they thought I had torn a ligament. In the end they gave me IV morphine which made me slightly sleepy and giggle, to helped ease the pain enough to transfer me into the ambulance safely, where they then gave me Gas and Air. I now understand why the women I looked after on the labour ward loved the stuff so much. At first it had me creasing up in laughter like a crazy woman, eventually I then thought I was dreaming the whole situation, which was when we decided I had maybe had enough of it. I have to say I was so impressed by the standard of care they gave me. They didn’t know anything about my condition, but they treated better than half the previous doctors I have seen!

The doctor Teeto and the nurse Precious in charge of my care, were again wonderful people. I feel extremely lucky to have been under the care. Teeto actually knew a fair bit about Dystonia and was not fazed by spasms at all. He quickly had me sent down to x-ray to make sure I had not broken my knee, where I had some more seizures on the poor woman as she to move my leg about. Thankfully I have not broken anything!! I have just damaged and pulled some of the bits in my leg. Teeto, sent me home with a box of Diazepam, his plan is for me to take this at regular intervals over the next few days, in the hope it will break this new spasm cycle.

Whilst I am in a lot pain now, and feeling rather spaced, I am so thankful that I was under the care of four such wonderful people last night. They were all so caring, and you could tell really wanted to help stop my pain and spasms. It is amazing the difference incredible people like these can make during times when you are in agony!

A flicker of faith restored for the NHS

On Tuesday night I ended up going to A&E to be treated for dehydration. By the time I was seen I had been without water, medication and food for about 32 hours. I count myself extremely lucky that the triage nurse and Doctor who treated me actually knew about Dystonia – this is a first! It took awhile to get a cannulae in me as my veins had done a disappearing act. I was given IV fluids and IV medication. The medication they gave me was called procyclidine. I had never had this medication before and was stunned by how well it worked.

The doctor who was looking after me was very caring, and came and checked on me every five minutes. He instructed me to take the procyclidine for two days (today is my last day on it). I am extremely glad they administered it to me as it really does seem to have had a beneficial effect. I am going to discuss with my consultant, whether it was worth continuing this medication or not.

I am glad that I was treated by two very nice people on Tuesday, as it restored a bit of faith in me for the NHS. Every time I am dismissed by the medical profession  it ends up inspiring me to make a difference! Just because my illness is not well known does not mean I should be shoved to the side.

 

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