Fighting Dystonia, Chronic Lyme, EDS Type 2 & more… any questions?

Posts tagged ‘UK’

New Prime Minister New Fears

With every general election, and with every leadership contest, we get new a new prime minister. A new figure, each with their own agenda and view. When it comes to politics, my number one concern has always been for the potential impact that the candidate and party will have on the NHS. Many laughed when America elected Trump to the presidency and in my eyes I worry that the conservative party may have just followed suit.

During President Trump’s recent visit to the UK he stated that everything was on the table for a deal – including our NHS! Whilst Theresa May later retracted his statement, it is clear where Trumps eyes are focused for trade and both he and Boris Johnson made it publicly known that they are on good terms. Is Boris as brazen as to go as far as ignoring May’s stance and instead pursuing a US/UK trade deal which involves the NHS to a degree? Who knows but I for one wouldn’t be surprised.

So why such concern? As with any service, the NHS has its issues which is to be expected when it is incredibly underfunded and overstretched, however the NHS is a complete blessing. Without our NHS I could not afford my treatment: regular injections and medications allow me to eat, drink, swallow, see and communicate with others verbally. It is literally life changing. For many, such as myself, the possibility that the NHS could be impacted is a terrifying prospect.

The Go Blue Movement

A little while ago a lovely woman called Rebecca Sharp who lives in America dyed a section of her blue to raise awareness for Dystonia (her father suffers from the condition). I thought this was a fantastic idea and we got talking. We have managed to make it into an international movement with many people agreeing to take part to raise awareness for Dystonia.

Dystonia Awareness week starts tomorrow (Saturday May 4th) and runs until Sunday 12th May. The idea is that during this week people either dye a section of their hair blue (you can even spray dye it) or clip a blue extension in, to show support for Dystonia and raise awareness. It is really easy to get involved with and a Facebook event page has been set up which you can easily join, and you can share photos of your blue hair in! The page also has links for those who would like to donate to either The Dystonia Society (UK) or the Dystonia Medical Research Foundation (USA). Both of these charities do fantastic work for Dystonia sufferers however they are in need of funds.

It’s an easy and fun way to raise funds and awareness and I urge you all to get involved!! Every person who joins in makes a huge difference. So join in with The Go Blue Movement! https://www.facebook.com/events/450399491712134/

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